Patient Privacy

Features to Build Consumer Trust in Patient Data Sharing

March 3, 2023 - Patients are interested in sharing their own medical information, so long as that patient data sharing comes with features like informed consent, transparency, and consumer oversight, according to a new paper in JAMA Network Open. These findings are important as more medical research hinges on patient opt-in for health data sharing. The bevy of...

Read More


More Articles

Patient Data Access is Insufficient for 60% of Healthcare Consumers

by Sarai Rodriguez

Providing patients with easy access to their health information can improve patient engagement. Yet, recent findings revealed that 60 percent of consumers don’t have adequate...

Caregiver Proxy Patient Portal Access Leaves Much to Be Desired

by Sara Heath

New research published in JAMA Network Open is showing that the patient portal isn’t exactly set up for caregiver engagement and use. Caregivers are certainly using the portal, the data showed,...

Understanding Proxy Access for the Patient Portal, Privacy Questions

by Sara Heath

A medical encounter rarely only involves the patient; with the rise in family engagement, most patients have at least some loved ones involved in their care, making proxy access a key feature of the patient portal. The patient portal is...

Strategies for Adolescent Patient Engagement, Teen Autonomy

by Sara Heath

Patient engagement is an essential part of healthcare, no matter the age of the patient. But when it comes to adolescent patients, engagement becomes a balancing act that demands providers weigh both...

How Does the Opioids Bill Address Patient Consent, Medical Records?

by Sara Heath

As efforts to address the opioid crisis and mental and behavioral health issues come to the forefront, as do questions of patient consent, privacy, and medical records access. Specifically, impending...

Do Health Data Security Concerns Influence Patient Data Sharing?

by Sara Heath

Patients need better assurances of PHI and health data security before opting into a health information exchange or other patient data sharing model, according to a study published in the Journal of...